Upcoming Events

Rare Disease Day 2017

When? February 28th, 2017

Where? 80+ countries worldwide

Theme? 'With research, possibilities are limitless' Research brings hope to people living with a rare disease!

Who? Coordinated by EURORDIS and celebrated by various disease related organizations, like the Mesothelioma Cancer Alliance who will be sharing information on other rare diseases on social media every Tuesday and Thursday of February. This day is for anybody affected by a rare disease – patients, families, advocates, doctors, nurses, researchers, government officials, pharmaceutical companies, disease specific organizations and foundations, etc.

Why? The main purpose of Rare Disease Day is to raise awareness and make an impact on patients lives.

How can you help? Join in on Rare Disease Day by creating your own local event/fundraiser, sharing your personal story with others, or participating in the conversation on social media using #raredisease and #rarediseaseday

Learn more at: and at



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