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Resources

The ABDA works closely with other organizations and coalitions in order to assist the Behcet's community. 

 

American College of Rheumatology (ACR) 

AARDA

Autoinflammatory Alliance

Global Genes

Keck Graduate Institute, Claremont, California

NIAMS

NINDS

NIH

NORD

Rare Connect

RDLA  (Rare Disease Legislative Advocates)

SID (Society of Investigative Dermatology)

SIMBA Italy

Website: http://www.behcet.it/

The primary activity of Simba's Fund is the information and the dissemination of knowledge inherent in Behcet's disease, together with the support and defense of the rights of patients and their families. The mission is implemented through its internet channels and widely spread through their regional representatives.


Ass. Française de Behçet

Website: http://www.association-behcet.org/

L'Association Françaises de la Maladie de BEHCET, régie par la loi de 1901, à été créée par des malades afin de faire connaître et reconnaître la Maladie de Behçet par le corps médical et les administrations concernées.


As. Española de Behçet

Website: http://www.behcet.es/

Promover la agrupación de todos los pacientes, familiares, profesionales e interesados para poder trabajar de forma coordinada en las posibles soluciones y facilitar el reconocimiento de la enfermedad.


UK Behçet's Syndrome Society

Website: http://behcets.org.uk/

The Behçet's Syndrome Society was formed in 1983 by Judith Buckle (1950-1997).


The Vasculitis Foundation

Website: http://www.vasculitisfoundation.org/

The Vasculitis Foundation (formerly the Wegener's Granulomatosis Association) was founded in 1986 by Marilyn Sampson, a Wegener's patient and registered nurse.


China Behcet's Patient Association

Website: http://www.behcet.com.cn

Support for people living with Behcet's Syndrome in China


Behcet yhteisö Finland

Website: http://www.behcet.fi/

We are a group of Finnish Behcet's Disease patients. We have gathered information about the disease, and our experiences with it on our website in finnish. On the website you can find contact info for our peer support person, that has been trained by the Finnish Rheumatism Association to help with arising questions. You may also sign up on the postal list on Harvinaiset-verkosto to get a magazine and updates on events and rehabilitation on the rare rheumatic disease/Behcet's Disease area.


 

Behcet's International

Website: http://www.behcetsinternati...

Behçets International is an organisation that wishes to co-ordinate international Behçets patient groups and empower them to achieve effective support for Behçets patients in their individual countries.

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 Behcet's Turkey

                                   Website: http://www.behader.org/

 

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HealthUnlocked

 

Website: https://healthunlocked.com/

HealthUnlocked is a social network designed for people who care about their health and the health of others. With hundreds of dedicated communities run by patient charities and health organizations and a million users visiting monthly it's the fastest growing hub for health support and information.


Behcet's Korea

Website: http://www.behcet.co.kr/

American Behcet's Disease Association Copyright 2014