Did you know that you can make a difference in the lives of rare disease patients by establishing a relationship with your congressional office? Learn how to get involved in rare disease advocacy and start making a difference today! http://rareadvocates.org/in-district-lobby-days/
Behcet's Disease is rare, affecting 16,000-20,000 in the United
States. It's crucial for our community to speak out and assist in
advocacy efforts. There's power in numbers, and we have the capacity to
obtain results! Contacting our Senators and State Representatives is as
simple as sending an email, writing a letter, or making a phone call.
Our efforts will make members of Congress more likely to support legislation related to rare diseases. Working together, Behcet's advocates across the country are raising awareness and some funding, but much more needs to be done! NORD provides excellent resources to help the rare disease communities and the Behcet's community. Learn more at: www.rarediseases.org/advocacy/initiatives-updates