2011 WALK FOR BEHCET'S DISEASE NEW YORK - What a success! With the hard work of all of our registrants (including those who raised funds remotely) and XOMA, Ltd (who sponsored the event), we were able to raise a RECORD amount of donations! OVER $100,000 (And still counting!) Still want to donate? It's not too late - CLICK HERE  to donate today and be counted in to this historic event!

 

ONGOING RARE DISEASE STUDY!
If interested in participating please review the Consent Form (download below) before calling and leave a message on the ABDA hotline at (800)723-4238 or at (631)656-0537. Mirta will call you back with more details on how to get involved.	Researchers at Keck Graduate Institute in Claremont, California, are studying serum samples in an attempt to identify and characterize new diagnostic biomarkers of cells, proteins and or nucleic acids of rare diseases. The study is funded in part by a grant from the National Science Foundation. The National Organization of Rare Disorders is a partner and plays and advisory role. The project is designed to provide a better understanding of the similarities and differences in patients of rare disease populations and to ultimately help select specific forms of treatment. Healthy family members may participate as part of the control group. At this time, the study is recruiting Behcet's patients and their healthy family members living in the United States. Serum samples from Behcet's patients will be obtained during the course of the patient's next routine lab work procedures as scheduled through their primary physician. The samples will then be sent to the KGI lab in California, at no cost to patients.
Download Consent Form by Clicking HERE.