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ABDA > Resource Links

- RESOURCE LINKS -

OTHER BEHCET'S SITES

IMPORTANT ORGANIZATIONS

INFORMATION LINKS

MEDICAL TERMS

MEDICAL SITES

MEDICAL PRODUCTS/AIDS

CLINICAL TRIALS

 OTHER SITES

 

 

     OTHER BEHCET'S SITES AND ORGANIZATIONS

 

       * Behcet's Canada- www.behcetscanada.com

 




    • RareConnect- www.rareconnect.com






              CoRDS at Sanford

             

    -Behcet's Korea


    -Supporters for Behcet's Disease

     

     



    IMPORTANT ORGANIZATIONS

    National Eye Institute (NEI)
    National Institutes of Health
    Bldg. 31, Rm. 6A32
    Bethesda, MD 20892-2510
    E-mail:
    2020@nei.nih.gov
    http://www.nei.nih.gov
    Tel: 301-496-5248
    Professionals 800-869-2020

    National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
    National Institutes of Health
    Bldg. 31, Rm. 4C05
    Bethesda, MD 20892-2350
    http://www.nih.gov/niams
    Tel: 301-496-8188
    Tel: 877-22-NIAMS (226-4267)

    National Institute of Dental and Craniofacial Research (NIDCR)
    National Institutes of Health
    Bldg. 45, Rm. 4AS19
    Bethesda, MD 20892-6400
    http://www.nidr.nih.gov
    Tel: 301-496-4261

    National Organization for Rare Disorders (NORD)
    P.O. Box 8923
    (100 Route 37)
    New Fairfield, CT 06812-8923
    http://www.rarediseases.org
    Tel: 203-746-6518
    Tel: 800-999-NORD (6673)
    Fax: 203-746-6481

    John Hopkins Vasculitis Center
    http://vasculitis.med.jhu.edu

    Wilmer Eye Institute at John Hopkins
    http://www.wilmer.jhu.edu

    American Academy of Ophthalmology
    http://www.aao.org


    American Foundation for the Blind
    http://www.afb.org


    American Optometric Association
    http://www.aoanet.org


    Lighthouse International
    http://www.lighthouse.org


    Low Vision Information Center

    http://www.lowvisioninfo.org/eyecause.htm

    National Association for Visually Handicapped
    http://www.navh.org

    Arthrite Montreal Arthritis (Arthritis West Island Self Help Association)
    http://www.arthritismontreal.ca
    A community resource that provides information, education, and support for people with arthritis to help them achieve a better quality of life.

    The Ocular Immunology and Uveitis Foundation- http://www.uveitis.org 

     

     


    INFORMATION LINKS

    Clinical Trials.gov
    A service of the National Institutes of Health developed by the National
    Library of Medicine.

    Find other clinical trials:
    The International Federation of Pharmaceutical Manufacturers & Associations
    is a non-profit, non-governmental Organization (NGO) representing national industry associations and companies from both developed and developing countries. Member companies of the IFPMA are research-based pharma-ceutical, biotech and vaccine companies.
    http://www.ifpma.org

    Social Security Online
    The official website of Social Security Administration

    You are Not Alone: 15 People with Bechets
    A book by Joanne Zeis

    AmericanHospitals.com
    A website that helps international patients find medical resources and information in the United States

     

    Hearttoheart.com
    For General Information

    Globarb.com
    For Nutritional Information

    Rev. Gloria Alvino: winters 727-394-0330, Summers 617-734-4609

    The Invisible Disabilities Advocate - MyIDA.org
    Do you know someone living with Behcet's Disease?  Do you struggle with what to say and what not to say?  Or do you, yourself, have Behcet's?  Do your loved ones have difficulty understanding?  We provide articles, links, booklets, support and much more! Visit Today!
     
    The National Library of Medicine On-line Vasulitis Tutorial for newly diagnosed patients and those suspecting a Behcet's diagnosis.
     
    You're one click away from learning about Menopause and Osteoporosis.  At the Menopause and Black Cohosh Information Center, you'll find out exactly what Red Clover Leaf, Black Cohosh, and Soy Isoflavones do for you, and what natural ingredients don't do anything.  Also you'll learn about on of the biggest things to hit women after Menopause - osteoporosis.  Learn as much as you can now!

     MEDICAL TERMS

    To search the National Library of Medicine for medical terms, use the search engine below.


    MEDICAL SITES

    HealingWell.com
    A guide to diseases, disorders and chronic illnesses.


    MEDICAL PRODUCTS/AIDS

    American Medical Identifications
    Click here for Free Shipping for ABDA members...
    Wearing a medical ID is important for a person with a rare disorder. It's not always easy to find a quality ID bracelet which can be engraved with personal medical information. American Medical Identifications features custom engraved bracelets, necklaces and medallions in stainless steel, gold and other precious metals at about 25% below what is typically found in a jewelry store.


    OTHER SITES

    ForCaregivers.com
    ForCaregivers.com is an organization newly formed by a group of business owners who have been involved in caring for their loved ones with special needs for a good part of their lives. The idea is to focus on the people who provide care to loved ones and family members, as well as people who provide care management to patients and beneficiaries.