Advocacy

Advocacy empowers patients, builds communities and drives forward momentum to improve the life of patients and their caregivers. The ABDA is part of patient advocacy groups, coalitions, organizations and institutions actively participating in advocacy efforts throughout the year. Help us advocate by taking part in "Call to Action" initiatives.

 

Call to Action

 

May 1, 2020

Let My Doctors Decide is a national partnership of leaders across health care in support of step therapy reform in dozens of states. Please send a message to your legislators encouraging them to support the Safe Step Act. Find legislators here: https://www.usa.gov/elected-officials

Access the template to write to your legislators here: Safe Step Act Advocacy Letter

Alternatively, if you’re unable to mail a letter, fill one out on line by clicking on Support the Safe Act: https://www.aarda.org/get-involved/action/voter-voice/

 

April 23, 2020

ABDA urges you to join us as we work with Autoimmune Related Diseases Association (AARDA) and other members of the NACPG of which we are a part of, to actively promote passage of the Safe Step Act to reform insurance-mandated step therapy processes by requiring a timely and medically-appropriate appeals process.

Step therapy isn’t a therapy. It is a harmful insurance company tactic that often requires patients to “fail first” on one or more drugs before getting the medicine that doctors originally prescribed.

Due to the harmful effect step therapy can have on autoimmune disease patients, AARDA leads Let My Doctors Decide, a national partnership of leaders across health care in support of step therapy reform in dozens of states.

Please join us by sending a message to your legislators encouraging them to support the Safe Step Act. Find your elected officials here: https://www.usa.gov/elected-officials

 

April 17, 2020

ABDA Joins Over 400 Organizations to Urge Department of Health and Human Services to Issue Guidance to Prohibit Discrimination during Medical Rationing

Patient organizations sent a letter on 04/17/2020 urging the Department of Health and Human Services (HHS) to issue further guidance addressing the application of federal non-discrimination laws during the COVID-19 pandemic.

The letter, led by the American Association of People with Disabilities, noted that too many state and hospital Crisis Standards of Care plans discriminate against people with disabilities and older adults. If implemented, these plans would deny or give lower-priority to life-saving treatment to people based on disabilities or age that have nothing to do with their ability to survive COVID-19.