- The US National Library of Medicine, National Institutes of Health (NIH), is accelerating biomedical discovery and data-powered health. It has a broad list of publications about Behcet's Disease (over 9000 articles) through PubMed.gov. Read the publications for Behcet's Disease here: https://www.ncbi.nlm.nih.gov/pubmed/?term=behcet+disease
- Joanne Zeis, an ABDA member, is a Board Certified Patient Advocate who has dedicated years to helping people with chronic and rare diseases. In 2006, she received the American Medical Association's highest national award for a non-medically-trained individual, the Citation for Distinguished Service, in recognition of her strong support for the rare disease population. Behcet's books by Joanne Zeis can be ordered online. She is the author of Behcet's Disease: MyModernHealth FAQs (recipient of 2015 National Health Information Merit Award, Patient Education), Essential Guide to Behcet's Disease and You Are Not Alone: 15 People with Behcet's
- Eileen Radziunas has advocated for the misdiagnosed and created awareness of rare diseases through her books, Prognosis for Misdiagnosis, But Doctor, You’re Wrong! and Lupus: My Search for a Diagnosis. She has established support groups for the chronically ill and has addressed medical students at both UCONN and YALE. Order Prognosis for Misdiagnosis here: eileenradz.com
