Behcet's Disease

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Coronavirus (COVID-19)

As our nation faces the extraordinary challenge of the novel coronavirus, COVID-19, the American Behcet's Disease Association is working to ensure that the needs of Behcet's patients and families are not overlooked. The ABDA continues to participate on daily calls to monitor updates about COVID-19, especially as they relate to our patients. We are communicating with leading experts to receive insights and information. By living apart, we stand together in solidarity with healthcare professionals, patients, families and the world. Please stay informed and diminish unnecessary risks.  Find quick facts and updated COVID-19 news here: https://www.behcets.com/covid-19-and-behcets-disease-3/
Your health and that of your families is our top priority as we navigate the day to day and long-term challenges ahead. The latest updates from trusted resources can be found at:
 

CDC  https://www.cdc.gov/coronavirus/2019-ncov/

NIH    https://www.nih.gov/health-information/coronavirus

FDA   https://www.fda.gov/…/mcm…/coronavirus-disease-2019-covid-19

WHO https://www.who.int/health-topics/coronavirus

ACR  https://www.rheumatology.org/announcements

NHC https://nationalhealthcouncil.org

 

Behcet's Disease and COVID-19 Survey

May 30, 2020 - The survey will be open until June 13, 2020. NO PERSONAL INFORMATION IS REQUIRED. If you have been diagnosed with Behcet's Disease, please help us understand how the COVID-19 pandemic has affected your symptoms. The survey has 22 questions and will take less than 5 minutes to complete. Take the survey here: https://www.surveymonkey.com/r/LJZYFSF

 

Webinars

May 28, 2020 - In partnership with AAIDA, ABDA co-hosted a Behcet's Disease educational webinar. Featured faculty rheumatologist Delfin Santos, MD, FACR, discussed core information of Behcet’s Disease, described clinical features, differential diagnosis, management and patient care. The slides and recording will be available soon. 
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April 3, 2020 - ABDA, in partnership with AARDA and the National Coalition of Autoimmune Patient Groups (NCAPG), 40 disease-specific organizations dedicated to the health and well-being of patients, co-hosted a webinar on Coronavirus and Autoimmune Disease on April 3, 2020. The recording and slides can be found here:
 

"After many years of illness, my physician suspected a diagnosis of Behcet's Disease. Getting in touch with the American Behcet's Disease Association allowed me to connect with other patients and physicians with ample knowledge of BD and gave me hope. I'm no longer alone!" M. Kelly

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WAYS TO HELP

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2020 Patient Education Program & Walk for Behcet's Disease

The 2020 Patient Education Program & Walk for Behcet's Disease is being redesigned as a virtual event.

As the outbreak of COVID-19 has been developing worldwide, ABDA has been closely tracking its impact on the global community. We have been monitoring daily recommendations from the Centers for Disease Control and Prevention (CDC) and World Health Organization (WHO), along with the numerous travel restrictions issued by companies and medical institutions. After carefully weighing the facts as well as our duties to members, attendees, and the local communities, we've made the difficult decision to postpone our 2020 in person events. Please stay tuned for our virtual events. Thank you for your constant support!

-The ABDA Board and Staff.

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