Behcet's Disease

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ABDA Advocates for Policies Important to People Living with Behcet's Disease and with Rare Diseases

The American Behcet's Disease Association advocates for policies affecting the lives of patients and their families. Our efforts aim to affect change, actively work on proposals to protect and improve key policies at the local, state and federal levels and ultimately improve patient outcomes and quality of life. Addressing issues such as access to care, treatment innovations, research and healthcare policies, the voice of patients in policy and treatment development is of utmost importance. We encourage the community to reach out to elected officials through "call to action" initiatives. 

 

Coronavirus (COVID-19)

As of June 15, 2021  nearly 311.9 million COVID-19 vaccine doses had been administered in the US, the CDC reported. The number of fully vaccinated Americans now totals more than 145.7 million, and more than 174.6 million have been given at least one dose.

The CDC has classified the delta coronavirus variant, which was first detected in India, as "a variant of concern" based on increasing evidence that it "spreads more easily and causes more severe cases when compared to other variants." The variant accounted for nearly 10% of US COVID-19 cases as of June 5, 2021 according to CDC estimates, but data suggest vaccination offers protection against the variant.
 
As our nation faces the extraordinary challenge of the novel coronavirus, COVID-19, the American Behcet's Disease Association is working to ensure that the needs of Behcet's patients and families are not overlooked. The ABDA continues to monitor updates about COVID-19, especially as they relate to our patients. We are communicating with leading experts to receive insights and information. By living apart, we stand together in solidarity with healthcare professionals, patients, families and the world. Please stay informed and diminish unnecessary risks.  Find quick facts and updated COVID-19 information here: https://www.behcets.com/covid-19-and-behcets-disease-3/
Your health and that of your families is our top priority as we navigate the day to day and long-term challenges ahead. The latest updates from trusted resources can be found at:
 
 

"After many years of illness, my physician suspected a diagnosis of Behcet's Disease. Getting in touch with the American Behcet's Disease Association allowed me to connect with other patients and physicians with ample knowledge of BD and gave me hope. I'm no longer alone!" M. Kelly

Dr Patient 696x464

WAYS TO HELP

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Membership

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Becoming a member will provide recognition as a reliable contributor to the ABDA's advocacy and educational effort. 

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MORE WAYS YOU CAN HELP

EVENTS

Patient Education Program & Walk for Behcet's Disease

As the outbreak of COVID-19 has been developing worldwide, ABDA has been closely tracking its impact on the global community. The Patient Education Program & Walk for Behcet's Disease  have been postponed until next year. Our free educational webinars are planned for 2021. Please stay tuned. 

Thank you for your constant support!

-The ABDA Board and Staff.

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